1181 KB0 KB200520252024Lesar, IrenaŽumbar, Tinaštevilka:3letnik:75str. 29-45, 154-170ISSN:0038-0474COBISSID_HOST:213288707URN:URN:NBN:SI:doc-XICOKK23enslZveza društev pedagoških delavcev SlovenijeSodobna pedagogikaautismAvtizemidentity-first languagelanguage preferencesnajprej identitetanajprej osebaOdrasliperson-first languagesamoopredelitevterminologijaterminologySamoopredelitev odraslih oseb z diagnozo avtizem iz Slovenije| Self-identification of adults diagnosed with autism in Slovenia|Naming an individual or a minority group is a very sensitive issue. In most societies that follow the principles of respect and non-discrimination, this issue is paid considerable attention in research. The language we use to describe minority groups can define their positions vis-a-vis the majority and establish a social hierarchy, as can the perspectives through which the defining characteristics of a particular group are viewed (e.g., language, nationality, gender and special needs). Characteristics that also have a significant impact on the lives of minority group members are often overlooked. In recent years, it has become commonplace to include the views of the members of the minority group under study concerning their language preferences. This aspect has been the main topic of our research, part of which is presented in this article. In our study, adults diagnosed with autism (n = 55) explained which terms used to refer to them in Slovenia they find offensive and which ones they prefer. The qualitative analysis found no consensus among the participants regarding preferred terms. Concerning the two main paradigms described in the article (person-first language and identity-first language), there was a predilection for person-first terminology. The participants identified the term person with autistic disorders as the least desirable, even though this is currently the official wording adopted in Slovenian legislation, mainly because it emphasises pathology and points to a flaw in the personVprašanje poimenovanja posameznika in/ali (manjšinske) družbene skupine je zelo občutljivo in se mu v večini družb, ki upoštevajo načeli spoštovanja in nediskriminatornosti, namenja kar nekaj raziskovalne pozornosti. S poimenovanjem zlasti manjšinskih družbenih skupin se do določene mere (lahko) opredeli tudi njihov položaj v odnosu do večinske skupine oz. nekakšna družbena hierarhija, pa tudi perspektiva, skozi katero se gleda na odločujočo značilnost te skupine (npr. jezik in narodnost, spol, posebne potrebe). Pri tem pa se neredko spregledajo preostale značilnosti, ki prav tako pomembno vplivajo na življenje pripadnikov manjšinskih skupin. V zadnjih letih se v tem kontekstu uveljavlja praksa, da se o poimenovanju povpraša pripadnike proučevane manjšinske skupine, kar je bil osnovni namen raziskave, katere del je predstavljen v prispevku. Odrasle osebe z diagnozo avtizem (n = 55) so utemeljile, katera v Sloveniji prepoznana poimenovanja doživljajo kot žaljiva in katera preferirajo. Kvalitativna analiza pokaže, da med anketiranci ni konsenza o najbolj zaželenem poimenovanju, medtem ko z vidika v teoriji prepoznanih paradigem (najprej oseba, najprej identiteta) v odgovorih prevladuje preferenca poimenovanj najprej oseba. Kot najmanj zaželeno poimenovanje so anketiranci opredelili oseba z avtističnimi motnjami, ki je sicer trenutno uradno poimenovanje v slovenski zakonodaji (ZUOPP-1 2011), predvsem ker v poimenovanju poudarja patologijo, motnjo in nakazuje na napako v osebi samiTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaZveza društev pedagoških delavcev Slovenije