130 KB35 KB198220252014Lisak, Natalijaštevilka:3/5letnik:53str. 255-263ISSN:0352-7956COBISSID:4247653URN:URN:NBN:SI:doc-UP90EV79enFakulteta za socialno deloSocialno deloCroatiačlovekove pravicedružine s posebnimi potrebamiHrvaškahuman rightskvaliteta življenjaosebe s posebnimi potrebamisocial worksocialno deloživljenske zgodbeThe integrative analysis of social factors in the life course of families with disabilities| the Croatian society context and disability|This integrative analysis contributes to the conceptualization of the social context that shapes the life course of families with children with disabilities and addresses the role of the Croatian society within that process. Development of community based support and human rights protection in Croatia are important societal changes that ensure access to desired family quality of life in the field of disability. For that reason, the analysis is based on respecting opinions and experiences of parents of disabled children in order to provide insight into the family life trajectories to discover the relevant factors of the social context. The narrative approach was used to collect life stories of families with children who had intellectual disabilities. The social context that shapes the family life course and their further opportunities includes: the underdevelopment of community based services; the legacy of institutional care; the great influence of religious beliefs and Catholic Church institutions; the parents' initiative for rights implementation and system changes; the active role of mothers in everyday family life and supportive family relationships. The results emphasize important community development changes in Croatian society by focusing on the context that shapes the life course perspective of families with disabilitiesČlanek pripomore h konceptualizaciji družbenega konteksta, ki oblikuje življenjski potek družin z otroki z ovirami, pri tem pa upošteva vlogo hrvaške družbe v tem procesu. Razvoj služb podpore v skupnosti in zaščita človekovih pravic sta na Hrvaškem pomembni družbeni spremembi, ki zagotavljata dostop do kakovostnega družinskega življenja na področju ljudi z ovirami. V tem pogledu analiza temelji na mnenjih in izkušnjah staršev otrok zovirami. Pri zbiranju življenjskih zgodb družin z intelektualno oviranimi otroki je bil uporabljen narativni pristop. Družbeni kontekst, ki oblikuje življenjski potek družin in njihove priložnosti, obsega: nerazvitost služb v skupnosti; zapuščino institucionalne oskrbe; velik vpliv religioznih verovanj in institucij katoliške cerkve, aktivizem staršev za uresničevanje pravic in sistemske spremembe; aktivno vlogo mater v vsakdanjem družinskem življenju in podporne družinske odnose. V rezultatih poudarimo spremembe v razvoju skupnosti v hrvaški družbi, zlasti pa kontekst, ki vpliva na življenjski potek družin, ki imajo otroke z oviramiTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaUniverza v Ljubljani, Fakulteta za socialno delo