{"?xml":{"@version":"1.0"},"edm:RDF":{"@xmlns:dc":"http://purl.org/dc/elements/1.1/","@xmlns:edm":"http://www.europeana.eu/schemas/edm/","@xmlns:wgs84_pos":"http://www.w3.org/2003/01/geo/wgs84_pos","@xmlns:foaf":"http://xmlns.com/foaf/0.1/","@xmlns:rdaGr2":"http://rdvocab.info/ElementsGr2","@xmlns:oai":"http://www.openarchives.org/OAI/2.0/","@xmlns:owl":"http://www.w3.org/2002/07/owl#","@xmlns:rdf":"http://www.w3.org/1999/02/22-rdf-syntax-ns#","@xmlns:ore":"http://www.openarchives.org/ore/terms/","@xmlns:skos":"http://www.w3.org/2004/02/skos/core#","@xmlns:dcterms":"http://purl.org/dc/terms/","edm:WebResource":[{"@rdf:about":"http://www.dlib.si/stream/URN:NBN:SI:doc-U96LO10B/17beeacb-ed0f-40bf-93d8-c2348b949653/PDF","dcterms:extent":"417 KB"},{"@rdf:about":"http://www.dlib.si/stream/URN:NBN:SI:doc-U96LO10B/4dd5db9a-5d79-4ff0-8cae-d7c3bf2d8ee6/TEXT","dcterms:extent":"38 KB"}],"edm:TimeSpan":{"@rdf:about":"2008-2025","edm:begin":{"@xml:lang":"en","#text":"2008"},"edm:end":{"@xml:lang":"en","#text":"2025"}},"edm:ProvidedCHO":{"@rdf:about":"URN:NBN:SI:doc-U96LO10B","dcterms:isPartOf":[{"@rdf:resource":"https://www.dlib.si/details/URN:NBN:SI:spr-FQ9JBKO1"},{"@xml:lang":"sl","#text":"Rehabilitacija (Ljubljana)"}],"dcterms:issued":"2016","dc:creator":["Potočnik Tumpaj, Vesna","Potočnik, Darja","Salobir, Barbara"],"dc:format":[{"@xml:lang":"sl","#text":"letnik:15"},{"@xml:lang":"sl","#text":"številka:2"},{"@xml:lang":"sl","#text":"str. 28-35"}],"dc:identifier":["ISSN:1580-9315","COBISSID:2234217","URN:URN:NBN:SI:doc-U96LO10B"],"dc:language":"sl","dc:publisher":{"@xml:lang":"sl","#text":"Univerzitetni rehabilitacijski inštitut Slovenije - Soča"},"dc:subject":[{"@xml:lang":"en","#text":"chronic disease"},{"@xml:lang":"en","#text":"coping with illness"},{"@xml:lang":"sl","#text":"družina"},{"@xml:lang":"en","#text":"Family"},{"@xml:lang":"en","#text":"family coping"},{"@xml:lang":"en","#text":"Hypertension, Pulmonary"},{"@xml:lang":"sl","#text":"kronične bolezni"},{"@xml:lang":"sl","#text":"pljučna hipertenzija"},{"@xml:lang":"en","#text":"psychology"},{"@xml:lang":"en","#text":"pulmonary hypertension"},{"@xml:lang":"sl","#text":"soočanje z boleznijo"}],"dcterms:temporal":{"@rdf:resource":"2008-2025"},"dc:title":{"@xml:lang":"sl","#text":"Soočanje slovenskih bolnikov s pljučno hipertenzijo in njihovih svojcev z boleznijo| Coping with pulmunary hypertension in patients and their families in Slovenia|"},"dc:description":[{"@xml:lang":"sl","#text":"Background: Pulmonary hypertension is a severe, debilitating disease that is characterised with progressive increase in pulmonary arterial pressure (PAP). It is defined by mean PAP while resting equal or greater than 25 mmHg. Hightened PAP leads to overload and dysfunction of the right ventricle. Eventually, this leads to right-ventricle failure, symptoms and signs of low minute heart volume, hypoxemia and consequently an early death. During intense medical treatment and prolongation of life the patients with PH and their families face various psychosocial difficulties. Beside new regulatory changes and developmental tasks a family with a PH patient must also learn to face and live with an unpredictable future and demanding treatment. Hence, we investigated the response of patients with PH and their families to a lifelong presence of pulmonary hypertension, focusing on the ways of coping with the disease. This topic has not been studied yet, so our study represents the beginning of research of psychosocial aspects of patients with PH in Slovenia"},{"@xml:lang":"sl","#text":"Izhodišča: Pljučna hipertenzija (PH) je obolenje, ki ga zaznamuje napredujoče višanje pljučnega arterijskega tlaka (PAT). Definirana je s srednjim PAT, ki je v mirovanju enak ali večji od 25 mm Hg. Zvišan PAT vodi v povečano obremenitev in nepravilno delovanje desnega prekata, do odpovedi desnega prekata, simptomov in znakov majhnega minutnega volumna srca, hipoksemije in drugih zapletov, ki vodijo v prezgodnjo smrt. Ob intenzivnem medicinskem zdravljenju in s tem podaljševanjem življenjske dobe se bolniki s PH in njihovi svojci soočajo z različnimi psihosocialnimi izzivi. Poleg normativnih sprememb in razvojnih nalog se morajo naučiti soočati in živeti z nepredvidljivo prihodnostjo in z zahtevnim zdravljenjem. S to raziskavo smo preučevali prilagajanje bolnikov in svojcev na življenje s PH, predvsem smo se osredotočili na način soočanja z boleznijo. Tako v tuji kot v slovenski literaturi je to področje še neraziskano, zato naša študija predstavlja začetek raziskovanja skupine bolnikov s PH v slovenskem prostoru tudi s psihološkimi spremenljivkami"}],"edm:type":"TEXT","dc:type":[{"@xml:lang":"sl","#text":"znanstveno časopisje"},{"@xml:lang":"en","#text":"journals"},{"@rdf:resource":"http://www.wikidata.org/entity/Q361785"}]},"ore:Aggregation":{"@rdf:about":"http://www.dlib.si/?URN=URN:NBN:SI:doc-U96LO10B","edm:aggregatedCHO":{"@rdf:resource":"URN:NBN:SI:doc-U96LO10B"},"edm:isShownBy":{"@rdf:resource":"http://www.dlib.si/stream/URN:NBN:SI:doc-U96LO10B/17beeacb-ed0f-40bf-93d8-c2348b949653/PDF"},"edm:rights":{"@rdf:resource":"http://rightsstatements.org/vocab/InC/1.0/"},"edm:provider":"Slovenian National E-content Aggregator","edm:intermediateProvider":{"@xml:lang":"en","#text":"National and University Library of Slovenia"},"edm:dataProvider":{"@xml:lang":"sl","#text":"Univerzitetni rehabilitacijski inštitut RS – Soča"},"edm:object":{"@rdf:resource":"http://www.dlib.si/streamdb/URN:NBN:SI:doc-U96LO10B/maxi/edm"},"edm:isShownAt":{"@rdf:resource":"http://www.dlib.si/details/URN:NBN:SI:doc-U96LO10B"}}}}