26 KB226 KB25 KB200820252011Jekovec-Vrhovšek, MajaNeubauer, Davidletnik:10številka:2COBISSID:1427561ISSN:1580-9315URN:URN:NBN:SI:doc-OLRGVHYFslUniverzitetni rehabilitacijski inštitut Slovenije - SočaRehabilitacija (Ljubljana)cerebralna paralizaodrasliotroci s posebnimi potrebamiOtrok s cerebralno paralizo raste in odrašča ---| The child with cerebral palsy is growing up ---|For many years cerebral palsy has been defined as a childhood disorder. With improved medical care, the life span tends to be nearly the same as in the general population. This fact is raising new needs of people with cerebral palsy and new aspects of quality of their life. Models of medical care in connection with transition of children and adolescents with cerebral palsy to young adults and adults in some European, American and Australian centers are reviewed. The present situation in Slovenia is analyzed and proposals on possibilities to improve the organization and dissemination of medical care for adults with cerebral palsy are givenCerebralna paraliza je bila več desetletij opredeljena le kot motnja v otroštvu. Z izboljšano medicinsko oskrbo je pričakovana življenjska doba ljudi s cerebralno paralizo skoraj enaka življenjski dobi tistih, ki je nimajo. To dejstvo poraja nove potrebe ljudi s cerebralno paralizo in nove poglede na kakovost njihovega življenja. Avtorja navajata primere t. i. dobre prakse medicinske oskrbe otrok in mladostnikov s cerebralno paralizo med odraščanjem v mlade odrasle in odrasle v nekaterih evropskih, ameriških in avstralskih centrih. Analizirata sedanje razmere na tem področju v Sloveniji in predlagata možne izboljšave organizacije in dostopnosti zdravstvene oskrbe za odrasle s cerebralno paralizoTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaUniverzitetni rehabilitacijski inštitut RS – Soča