173 KB42 KB199420252024Hodaj, TinaRamšak-Pajk, Jožicaštevilka:3letnik:58str. 207-215DOI:10.14528/snr.2024.58.3.3233ISSN:1318-2951COBISSID_HOST:208399107URN:URN:NBN:SI:doc-NAPR1SKWslZbornica zdravstvene negeObzornik zdravstvene negechilddevelopmental disordersdružinafamilyotrokrazvojne motnjePotrebe staršev otrok z motnjo avtističnega spektra| pregled literature| The needs of parents of children with autism spectrum disorder| a literature review|Introduction: Autism spectrum disorders represent a category of developmental disorders characterised by severe deficits in social communication and interaction. The aim of this literature review was to examine the obstacles encountered by parents raising children with autism spectrum disorders.Methods: Methodologically, this study represents a literature review entailing a comprehensive search of multiple databases, including CINAHL, COBISS, PubMed, SpringerLink, and Google Scholar. We used the following keywords to generate the search query: "early intervention", "autism disorder", "parents", "stress", and "diagnosis". The search protocol adhered to specific inclusion criteria, which included the following parameters: publication date between 2012 and 2022, availability of full-text articles, and text in Slovenian or English.Results: From a total of 31217 hits that met the inclusion criteria, 14 studies were selected for the final review. The results of the review were classified into four distinct categories: (1) emotional challenges experienced by parents raising children with autism spectrum disorders, (2) obstacles faced by these parents, (3) support for parents in overcoming these challenges, and (3) aspirations and requirements expressed by parents of children with autism spectrum disorders.Discussion and conclusion: Parents caring for children with autism spectrum disorders struggle with a range of adverse emotions and sentiments, which include but are not limited to feeling overwhelmed, scared, anxious, tired, misunderstood, and encountering obstacles when seeking information and support. Timely diagnosis of an autism spectrum disorder in a child and access to the necessary services can yield several benefits, such as promoting the child’s developmental progress, mitigating financial burdens, and fostering better coping mechanisms for parental stressUvod: Avtistične motnje so skupina razvojnih motenj z največjim primanjkljajem na področju socialne komunikacije in interakcije. Namen pregleda literature je raziskati in predstaviti težave, s katerimi se soočajo starši otrok z avtistično motnjo.Metode: Uporabljen je bil pristop pregleda tuje in domače literature s pomočjo bibliografskih baz CINAHL, COBISS, PubMed, SpringerLink in brskalnika Google učenjak. Iskalni pojmi so bili: zgodnja obravnava, avtistična motnja, starši, stres, diagnoza oziroma early intervention, autism disorder, parents, stress in diagnosis. Iskalna strategija je temeljila na vključevalnih kriterijih: objava literature med letoma 2012 in 2022, dostopnost celotnega besedila in slovenski ali angleški jezik besedila. Rezultati: Glede na vključitvene kriterije smo pridobili 31.217 zadetkov, v končno analizo pa vključili 13 virov. Rezultati so pokazali štiri kategorije: negativna čustva in občutki, ki jih doživljajo starši otrok z avtistično motnjo; prepreke staršev otrok z avtistično motnjo; podpora staršem otrok z avtistično motnjo ter želje in potrebe staršev otrok z avtistično motnjo.Diskusija in zaključek: Starši otrok z avtistično motnjo se soočajo s številnimi negativnimi čustvi in občutki, kot so preobremenjenost, strah, tesnoba, izčrpanost, nerazumevanje, doživljanje preprek pri iskanju informacij in podpore. Zgodnje diagnosticiranje avtistične motnje pri otroku in s tem zgodnji pristop do potrebnih storitev lahko izboljšata rezultate pri otroku, zmanjšata finančne stroške in izboljšata obvladanje stresa pri staršihTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaZbornica zdravstvene in babiške nege Slovenije - Zveza strokovnih društev medicinskih sester, babic in zdravstvenih tehnikov Slovenije