561 KB37 KB200820252024Špoljar, JanezTkalec, Janaštevilka:1letnik:23str. 21-27COBISSID_HOST:205467395ISSN:2232-545XURN:URN:NBN:SI:doc-ILEYMLU4slUniverzitetni rehabilitacijski inštitut Republike Slovenije - SočaRehabilitacija (Ljubljana)Electric Stimulationfunctional electrical stimulationfunkcionalna električna stimulacijaokvara hrbtenjačeOrthotic Devicesorthoticsortozepositive effectspozitivni učinkirehabilitationSpinal Cord Injuriesspinal cord injuryUporaba ortoz in funkcionalne električne stimulacije v domačem okolju pri pacientih z okvaro hrbtenjače| Use of orthoses and functional electrical stimulation in the home environment in patients with spinal cord injury|Background: The upright position in patients with spinal cord injury improves their psychological status, renal function, bone density, positively affects spasticity, orthostatic hypotension and joint range of motion. Various assistive devices can be used for standing and walking, such as knee ankle foot orthoses and functional electrical stimulation (FES). The aim of the research was to find out how people with spinal cord impairment use these aids in their home environment, what is their impact on functional abilities, quality of life and positive effects and possible negative experiences when using them. Methods: The survey was sent to 139 patients with spinal cord injury, who completed rehabilitation at the University Rehabilitation Institute, Republic of Slovenia (URI) from 2013 to 2017, and received orthoses or FES for one or both lower limbs at the time of dismissal. Research was approved by the Medical Ethics Committee of the URI (No. 61/2018). Results: Of the 98 patients who received orthoses, 45 returned the completed survey. Of these, the majority (87 %) still use the orthoses, mostly for walking outside (41 %). Among the positive effects, better well-being (69%) was most often mentioned, while the unwanted features were the difficult and long-lasting installation of orthoses (36 %). Of the 41 patients who received FES, we received 18 completed surveys. Even oBackground: The upright position in patients with spinal cord injury improves their psychological status, renal function, bone density, positively affects spasticity, orthostatic hypotension and joint range of motion. Various assistive devices can be used for standing and walking, such as knee ankle foot orthoses and functional electrical stimulation (FES). The aim of the research was to find out how people with spinal cord impairment use these aids in their home environment, what is their impact on functional abilities, quality of life and positive effects and possible negative experiences when using them. Methods: The survey was sent to 139 patients with spinal cord injury, who completed rehabilitation at the University Rehabilitation Institute, Republic of Slovenia (URI) from 2013 to 2017, and received orthoses or FES for one or both lower limbs at the time of dismissal. Research was approved by the Medical Ethics Committee of the URI (No. 61/2018). Results: Of the 98 patients who received orthoses, 45 returned the completed survey. Of these, the majority (87 %) still use the orthoses, mostly for walking outside (41 %). Among the positive effects, better well-being (69%) was most often mentioned, while the unwanted features were the difficult and long-lasting installation of orthoses (36 %). Of the 41 patients who received FES, we received 18 completed surveys. Even of these, the majority (83f these, the majority (83 %) still use FES, mostly for outdoor walking (47 %) and muscle strengthening (27 %). Among positive effects, improved quality of life was most often mentioned (53 %), while fear of falling (47 %) was the most frequently listed problem with the use of FES. Conclusions: Most patients still use the prescribed device because of various positive effects on their well-being and quality of lifeUvod: Pokončni položaj pri pacientih z okvaro hrbtenjače izboljša njihovo razpoloženje, ledvično funkcijo in kostno gostoto, ugodno vpliva na spastičnost, ortostatsko hipotenzijo ter gibljivost sklepov. Za izboljšanje funkcije stoje in hoje lahko uporabimo različne pripomočke, kot so ortoze in funkcionalna električna stimulacija (FES). Namen raziskave je bil ugotoviti, kako osebe z okvaro hrbtenjače te pripomočke uporabljajo v domačem okolju, kakšen je njihov vpliv na funkcijske zmožnosti, kakovost življenja ter pozitivne učinke in morebitne negativne izkušnje ob uporabi le-teh. Metode: Anketo smo poslali 139 pacientom z okvaro hrbtenjače, ki so zaključili rehabilitacijo na Univerzitetnem rehabilitacijskem inštitutu Republike Slovenije Soča (URI Soča) v obdobju od leta 2013 do leta 2017 ter so ob odpustu prejeli ortozo ali FES za en ali oba spodnja uda. Raziskavo je odobrila Komisija za medicinsko etiko URI Soča (št.: 61/2018). Rezultati: Od 98 pacientov, ki so prejeli ortoze, jih je izpolnjeno anketo vrnilo 45. Od teh jih večina (87 %) ortoze še vedno uporablja, večinoma za hojo zunaj (41 %). Od pozitivnih učinkov so najpogosteje navajali boljše počutje (69 %), od neželenih lastnosti pa težko in dolgotrajno nameščanje ortoz (36 %). Od 41 pacientov, ki so prejeli FES, smo prejeli 18 izpolnjenih anket. Tudi od teh jih večina (83 %) še vedno uporablja FES, večinoma za hojo na prostem (47 %) in krepitve mišic (27 %). Od pozitivnih učinkov so najpogosteje navajali izboljšano kakovost življenja (53 %), med težavami ob uporabi pa strah pred padci (47 %). Zaključek: Večina pacientov je poročala, da predpisani pripomoček zaradi pozitivnega vpliva na počutje ter kakovost življenja še vedno uporabljaTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaUniverzitetni rehabilitacijski inštitut RS – Soča