47 KB143 KB44 KB199420252009Pahor, MajdaŠtrancar, Klelijaštevilka:2letnik:43str. 119-127ISSN:1318-2951COBISSID:3793259URN:URN:NBN:SI:doc-HFWR4VE4slZbornica zdravstvene negeObzornik zdravstvene negePaliativna oskrbaPalliative caresvojciTeminalna oskrbaTerminal careumirajočiLjudje v bližini smrti| a qualitative research| kvalitativna raziskava| People in the presence of death|Introduction: Life transitions dying and death are relatively new research issues which in Slovenia have not yet been explicitly elaborated on. Through research the voices of the vulnerable social groups - the dying and their families - will be heard. Methods: Interviews with the dying and their relatives have been conducted within a comprehensive qualitative research study on palliative care in Slovenia. The article presents the analysis of thetranscripts of the interviews through the principles of justified theory. Results: The research enables the collection of voices of the dying and their significant others. The analysis of the statements collected points at the multidimensional processes of dying and bereavement. At the forefront is the experience of bodily change and pain. Psychologically these processed have been described in categories of anxiety, fatigue and lassitude or the positiveexperience of life reflections. Most of the patients do not mention the impending death and some even deny it categorically. The results concerning the social milieu are threefold: the nearest and dearest who simultaneously offer solace and cause concern, the broader social context stigmatizing their condition and finally the hospital environment which offershelp and support but also generates suffering. The analysis of the interviews identified two main categories, namely, the experience of medical help and the experience of self. Discussion: The dying and their families arevulnerable groups for whom new integrated forms of care should be developed on all levels of healthcareIzhodišča: Veliki življenjski prehodi, kot je umiranje in smrt, so relativno nov predmet raziskovanja in v slovenskem prostoru skorajda še ne tematiziran. Skozi raziskovanje se lahko sliši glas ranljivih družbenih skupin - umirajočihin njihovih svojcev. Metode: V okviru širše kvalitativne raziskave o paliativni oskrbi v Sloveniji so bili opravljeni tudi intervjuji z umirajočimi in njihovimi svojci. V članku avtorici analizirata transkripte intervjujev s pomočjo principov utemeljene teorije. Rezultati: Raziskava omogoča pridobitev glasu umirajočih in njihovih svojcev. Analiza izjav obojih kaže na večplastnost procesa umiranja in žalovanja. Najbolj v ospredju je doživljanje telesa v zvezi s spremenjeno telesno podobo in bolečino. Psihično doživljanje opišejo kategorije tesnoba, utrujenost in naveličanost, vpozitivnem smislu pa refleksija življenja. Večina bolnikov ne omenja bližnje smrti, pri nekaterih je to zanikanje izrazito. Rezultati, ki se nanašajo na doživljanje socialnega okolja, so razporejeni na treh ravneh: najbližji, ki sohkrati opora in vir skrbi, širše socialno okolje, kjer čutijo stigmo zaradi bolezni, ter bolnišnično okolje, ki je dvojno - je vir pomoči in tolažbe, a tudi vir trpljenja. Analiza intervjujev s svojci je identificirala dve glavni kategoriji: doživljanje zdravstvene oskrbe in doživljanje sebe. Razprava: Umirajoči in njihovi svojci so ranljiva skupina, za katero je potrebno razviti novejše integrirane oblike skrbi na vseh ravneh zdravstvenega varstvaTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaZbornica zdravstvene in babiške nege Slovenije - Zveza strokovnih društev medicinskih sester, babic in zdravstvenih tehnikov Slovenije