808 KB43 KB199420252025Horvat, MojcaKavčič, MarkoKlanjšek, PetraStričević, Jadrankaštevilka:4letnik:59str. 232-240DOI:10.14528/snr.2025.59.4.3192ISSN:1318-2951COBISSID_HOST:262440195URN:URN:NBN:SI:doc-FM3WOLR8slZbornica zdravstvene negeObzornik zdravstvene negecancerchildrenfamily-centered carehealth carehospitalisationhospitalizacijaotrokparentsrakstaršiv družino usmerjena skrbzdravstvena negaVključevanje staršev v zdravstveno oskrbo hospitaliziranega otroka z rakom| model v družino usmerjena zdravstvena oskrba| Involving parents in the health care of hospitalised children with cancer| a model of family-centred care|Introduction: Successful implementation of the concept of family-centred health care in clinical practice is a significant challenge for the multidisciplinary team treating children with cancer and their families. The aim of this study was to examine perception and team practices in the Slovenian context.Methods: The study was conducted using a questionnaire on family-centered care in pediatric oncology (Family-Centered Care Questionnaire-Revised). The sample comprised 80 multidisciplinary team members, of whom 63 returned completed questionnaires. Data were analysed using SPSS software. Statistical analyses included descriptive and inferential procedures (Mann-Whitney U-test and Kruskal-Wallis test).Results: The findings indicate that the multidisciplinary team treating children with cancer is largely aware of the importance of child- and family-centred care (x = 2.28, s = 0.550). However, discrepancies exist in awareness regarding the importance of caring for the entire family (x = 2.60, s = 0.670). Differences were observed in parental involvement in care, particularly between professionals with varying levels of work experience (p = 0.024), and between intensive care and oncology care teams (p < 0.001).Discussion and conclusion: We must strive for high-quality, modern health care that addresses the needs of both the child and parents, leading to better treatment outcomes, shorter hospital stays, greater satisfaction, and reduced costs. This understanding should be integrated into the organisational structures, guideline development, procedures, and every interaction between professionals and familiesUvod: Uspešna implementacija koncepta družini usmerjene zdravstvene oskrbe v klinično okolje je velik izziv za multidisciplinarni tim pri zdravljenju otrok z rakom in njihovih družin. Namen raziskave je bil preučiti percepcijo in prakso tima v slovenskem okolju.Metode: Raziskava je bila izvedena z anketnim vprašalnikom o oskrbi, osredotočeni na družino v pediatrični onkologiji (angl. Family-Centered Care Questionnaire-Revised). Vzorec je vključeval 80 članov multidisciplinarnega tima, od katerih je 63 vrnilo izpolnjene anketne vprašalnike. Podatki so bili analizirani s programom SPSS, uporabljeni so bili deskriptivni in interferenčni statistični postopki, vključno z Mann-Whitneyjevim U-testom in Kruskal-Wallisovim testom.Rezultati: Raziskava je pokazala, da se multidisciplinarni tim, ki obravnava otroke z rakom, v veliki meri zaveda pomena oskrbe, osredinjene na otroka in družino (x = 2,28, s = 0,550). Obstajajo odstopanja v zavedanju pomena skrbi za celotno družino (x = 2,60, s = 0,670). Razlike so bile ugotovljene glede vključevanja staršev v oskrbo, predvsem med strokovnjaki z različnimi delovnimi izkušnjami (p = 0,024) ter med negovalnimi timi intenzivne terapije in onkologije (p < 0,001).Diskusija in zaključek: Moramo si prizadevati za kakovostno sodobno zdravstveno oskrbo, ki zadostuje potrebam otroka in staršem ter vodi do boljših rezultatov zdravljenja, krajših hospitalizacij, večjega zadovoljstva in nižjih stroškov. To razumevanje mora biti vključeno v organizacijo, oblikovanje smernic, postopke ter v vsak stik strokovnjakov z družinoTEXTznanstveno časopisjejournalsSlovenian National E-content AggregatorNational and University Library of SloveniaZbornica zdravstvene in babiške nege Slovenije - Zveza strokovnih društev medicinskih sester, babic in zdravstvenih tehnikov Slovenije