URN:NBN:SI:doc-E8ANI5KQ2021Halec, BineHorvat-Pinterić, GordanaLorber, MatejaŽunkovič, Olgadocuments/doc/E/URN_NBN_SI_doc-E8ANI5KQ_001.pdfdocuments/doc/E/URN_NBN_SI_doc-E8ANI5KQ_001.txt155articlestr. 16-231318-295156521731URN:NBN:SI:doc-E8ANI5KQslvZbornica zdravstvene negeObzornik zdravstvene negeBYencimska nadomestna terapijaenzyme replacement therapykakovost življenjanursing carequality of liferare diseasesredke boleznizdravstvena negaa case studyKakovost življenja oseb s Pompejevo boleznijoQuality of life of patients with Pompe diseaseštudija primera