{"?xml":{"@version":"1.0"},"edm:RDF":{"@xmlns:dc":"http://purl.org/dc/elements/1.1/","@xmlns:edm":"http://www.europeana.eu/schemas/edm/","@xmlns:wgs84_pos":"http://www.w3.org/2003/01/geo/wgs84_pos","@xmlns:foaf":"http://xmlns.com/foaf/0.1/","@xmlns:rdaGr2":"http://rdvocab.info/ElementsGr2","@xmlns:oai":"http://www.openarchives.org/OAI/2.0/","@xmlns:owl":"http://www.w3.org/2002/07/owl#","@xmlns:rdf":"http://www.w3.org/1999/02/22-rdf-syntax-ns#","@xmlns:ore":"http://www.openarchives.org/ore/terms/","@xmlns:skos":"http://www.w3.org/2004/02/skos/core#","@xmlns:dcterms":"http://purl.org/dc/terms/","edm:WebResource":[{"@rdf:about":"http://www.dlib.si/stream/URN:NBN:SI:DOC-M4JNEGBR/d3fa45fd-2d81-43ba-ad76-42377afb0f30/PDF","dcterms:extent":"232 KB"},{"@rdf:about":"http://www.dlib.si/stream/URN:NBN:SI:DOC-M4JNEGBR/8e54d023-3a38-4eb3-8237-96756d79b5cd/TEXT","dcterms:extent":"39 KB"}],"edm:TimeSpan":{"@rdf:about":"1929-2026","edm:begin":{"@xml:lang":"en","#text":"1929"},"edm:end":{"@xml:lang":"en","#text":"2026"}},"edm:ProvidedCHO":{"@rdf:about":"URN:NBN:SI:DOC-M4JNEGBR","dcterms:isPartOf":[{"@rdf:resource":"https://www.dlib.si/details/urn:nbn:si:spr-a30mfzkp"},{"@xml:lang":"sl","#text":"Zdravniški vestnik"}],"dcterms:issued":"2015","dc:creator":["Avčin, Tadej","Blazina, Štefan","Bratanič, Nevenka","Debeljak, Maruša","Ihan, Alojz","Jazbec, Janez","Kopač, Peter","Koren, Anja","Košnik, Mitja","Kuhar, Marijana","Markelj, Gašper","Pikelj Pečnik, Andreja","Pokorn, Marko","Toplak, Nataša"],"dc:format":[{"@xml:lang":"sl","#text":"številka:12"},{"@xml:lang":"sl","#text":"letnik:84"},{"@xml:lang":"sl","#text":"str. 797-808"}],"dc:identifier":["ISSN:1318-0347","COBISSID:32457945","URN:URN:NBN:SI:doc-M4JNEGBR"],"dc:language":"sl","dc:publisher":{"@xml:lang":"sl","#text":"Slovensko zdravniško društvo"},"dc:subject":[{"@xml:lang":"en","#text":"awareness"},{"@xml:lang":"sl","#text":"nacionalni register"},{"@xml:lang":"sl","#text":"ozaveščenost"},{"@xml:lang":"sl","#text":"primarna imunska pomanjkljivost"},{"@xml:lang":"en","#text":"primary immunodeficiency"},{"@xml:lang":"en","#text":"registry"}],"dcterms:temporal":{"@rdf:resource":"1929-2026"},"dc:title":{"@xml:lang":"sl","#text":"Slovenski nacionalni register bolnikov s primarno imunsko pomanjkljivostjo| Slovene national registry of patients with primary immunodeficiency|"},"dc:description":{"@xml:lang":"sl","#text":"Background: Data from the Slovene National Primary Immunodeficiency (PID) Registry are presented. Besides clinical and genetic data of patients with PID, quality indicators in patient care are included. Methods: Data are systematically collected in the Department of Allergology, Rheumatology and Clinical Immunology in collaboration with physicians of different specialities. Results: An increasing number and spectrum of PID are recognised in Slovenia. After the es - tablishment of a Slovene multidisciplinary group for PID care in 2007, thorough immunological and genetic diagnostics, subcutaneous immuno - globulin replacement and treatment of PID by haematopoietic stem cell transplantation were introduced in routine clinical practice in Slove - nia. Increased medium age of PID patients re - flects improved survival and better recognition of PID in adults. Conclusions: According to the data in compa - rable registries, percentages of patients with pre - dominantly antibody deficiencies and comple - ment deficiencies are low and high, respectively"},"edm:type":"TEXT","dc:type":[{"@xml:lang":"sl","#text":"znanstveno časopisje"},{"@xml:lang":"en","#text":"journals"},{"@rdf:resource":"http://www.wikidata.org/entity/Q361785"}]},"ore:Aggregation":{"@rdf:about":"http://www.dlib.si/?URN=URN:NBN:SI:DOC-M4JNEGBR","edm:aggregatedCHO":{"@rdf:resource":"URN:NBN:SI:DOC-M4JNEGBR"},"edm:isShownBy":{"@rdf:resource":"http://www.dlib.si/stream/URN:NBN:SI:DOC-M4JNEGBR/d3fa45fd-2d81-43ba-ad76-42377afb0f30/PDF"},"edm:rights":{"@rdf:resource":"http://creativecommons.org/licenses/by-nc/4.0/"},"edm:provider":"Slovenian National E-content Aggregator","edm:intermediateProvider":{"@xml:lang":"en","#text":"National and University Library of Slovenia"},"edm:dataProvider":{"@xml:lang":"sl","#text":"Slovensko zdravniško društvo"},"edm:object":{"@rdf:resource":"http://www.dlib.si/streamdb/URN:NBN:SI:DOC-M4JNEGBR/maxi/edm"},"edm:isShownAt":{"@rdf:resource":"http://www.dlib.si/details/URN:NBN:SI:DOC-M4JNEGBR"}}}}