�---- DelbrUck / Rehabilitacija - letn . VIL supl. 2 (2008) ___________ _ GERMAN POL/CY IN REHABILI TATION OF CANCER PATIENTS Prof. dr. Hermann OelbrUck Arbeitsgemeinschaft fur Rehabilitation, Nachsorge und Sozialmedizin (ARNS), Germany Summary Rehabilitation of cancer patients is a complex discipline that involves the interaction of many diverse medica/ health care providers in Germany (pension insurance, accident insurance, federal employment agency, carri­ ers of social compensationfor health damages, private insurance companies, social welfare ... ) More than 80 o/o of ali inpatient rehabilitation costs are covered by the pension funds and almost 80 % of costs far out­ patient rehabilitation are covered by health insurance companies. Allhough orthopaedic rehabilitation stili constitutes the most frequent use of patient rehabilitation in Germany. cancer rehabilitation is becoming more and more impor­ tant. Actually 21,3% of all patients treated in rehabilitation clinics are cancer patients. Many rehabilitation clinics in Germany actually convert into rehabilitation clinics for cancer patients. Most of thcse cancer patients have breast cancer. malignant tumours in the gastrointestinal and in the urologic area. Meanwhile there are more than 200 cancer rehabilitation hospitals. spread over the whole of Germany. DEFINITION AND GOALS In Germany we distinguish "medica! after care" from "rehabilitative care". The fir st one focuses on i mprov­ i ng survival, the latter focuses on improving ··:quality" of survival tirne. Table: Cancer Medica/ after care includes • To deteci carly of recidivis (smaller tumour increases the chances for curing the patients). • To do adjuvant treatments (in the hope they would prevent recurrences) • To do additive treatments (in the hope this would stabilize tumour growth and reduce canccr activity) • To treat recurrences (in the hope this would stop cancer growth) .. II There are some guidelines far the professional qualifica­ tion of the personnel involved in rehabilitation of cancer patients. In nearly all European countries outpatient reha­ bilitation measures are given priority, except for Gennany. Most of cancer rehabilitation hospitals have specially trained personnel and are located in a nice surroundings. Outpatient rehabilitation is stili in the process of being developed in Germany. Germany has guidelines that exclusively concern onco­ logical rehabilitation measures. Psychological, social and vocational rehabilitation measures play an important role in the rehabilitation process. "Rehabilitative care " does not focus on influencing the ill­ ness, but rather on reducing disabilities due to thc tumour and therapy. The negative effects of the disease and cor­ responding therapy in physical, psychic. social and voca­ tional areas should be eliminated or at least mitigated by rchabilitation. Table: Cancer rehabilitative care includes • to deteci impairments and disabilities due to rhe cancer illness and due to the treatment as well • to abolish or at least to reduce impairments and disabilities due to the cancer illness and due to the treatment as well • to rc-establish impaired functions or at least to compensate impairments and disabilities duc to the cancer illness and due to the treatment as well • to prevent late impairments and disabilities due to the cancer illness and due to the treatment as well Quality of li f e and goals of rehabilitation are often con­ founded with those of wellness. Sure. wellness is an impor­ tant part ofr ehabilitation in German, too; but rehabilitation is far more. Other people and other European countries consider rehabilitation to be mainly a somatic reparation discipline. In these countries rehabilitative measures are often associated with physical therapy and mainly hydro­ therapy. Physiotherapy. massages, and hydrotherapy are important rehabilitative measures in Germany as well but in many other cancer patients measures such as psychosocial and vocational support may be more important. Rehabili­ tation in Germany is considered to be a multidisciplin ary ____________ Delbri.ick / Rehabilitacija -letn. VIL supl. 2 (2008) ___________ _ effort to be achieved by an holistic approach. This holistic approach means the inclusion of physical, psychic, social. and vocational measures. These measures are to be con­ sidered equal. To have cancer does not automatically mean to have a rehabilitative need. Rehabilitation does not require that the patient to be free of a tumour. Rehabilitation may be neces­ sary in cured patients and in patients whose disease is not responsive to curative treatment as well. Rehabilitation and palliation are not mutually exclusive. FINANCING In most European countries the medica( insurance compa­ nies pay for the costs of medica! rehabilitation. Germany is an exception. In Germany pension funds and not medica( insurances pay more then 80% for the costs of stationary cancer rehabilitation. On the other side pension funds pay only about 25% for ambulant rehabilitation. Medica! insur­ ance companies pay for medica! aid supply. LEGAL BASIS OF REHABILITATION In Germany each cancer patient has the legal right to claim medica! rehabilitation. Ever y cancer patient in Germany has the right by law to a period of inpatient treatment of about 21 - 26 days after completion of acute treatment. One in three cancer patients makes use of this opportunity for inpatient rehabilitation. In most European countries, such as Ger many, ali cancer patients are entitled to a legal certificate which makes them eligible for special advantages. This certificate must be renewed at least once eve ry five years. In Germany you find these rights in the Sozialgesetzbi.icher. INPATIENT REHABILITATION SERVICE OUTPATIENT REHABILITATION SERVICE Rehabilitation can be performed in both inpatient and outpatient settings. In nearly ali European countries, out­ patient rehabilitation measures are given priority, except for Germany. Here almost ali rehabilitation measures are predominantly performed within inpatient programs in special cancer rehabilitation hospitals. Most of these German cancer rehabilitation hospitals are located in a nice surrounding. An important note is that these clinics simultaneously undertake measures to avoid recurrences or worsening of the disease. This includes medica( after care and means besides rehabilitative measures prevention, recognition and palliative treatment in case of relapses are being performed. THE PROFESSIONAL QUALIFICATION OF THE PERSONNEL INVOLVED IN REHABILITATION In Germany the initiation, coordination and surveillance of rehabilitative measures in cancer patients are mainly directed by doctors. The doctors in Germany must hold a diploma of medica! oncology and rehabilitative medicine as well. Psychologists play a crucial role in the cancer rehabilitation team. In Germany there is a special diploma only for psycho oncologists. Only those rehabilitation hospitals in Germany are allowed to rehabilitate cancer patients when they have at least one psycho oncologist every 80 patients. Physical therapists are very important in some areas. Physical therapists in the Netherlands are highly qualified. They have an academic diploma which is not the case in Germany. Qualified stoma care nurses are extremely important in can­ cer rehabilitation. Their training lasts more then 6 months in Germany whereas other countries pay less attention to this training. REHABILITATION TEAM physicians exper,enced in rehabilitative medicine and oncology as well famtly I psychologi . st exper . 1enced speech ther ap,st \ / in oncol ogy ' '- \ / / phys1otherap1st self-help group -....___ � ----- :.--- ergotheraptst clergyman +----► Patient --- /2 art therap,st prosthe tic therap,s t � I �. social worker nutritional theraptst / \ ostomy theraptst vocattonal advtser nurse QUALITY CONTROL AND OUTCOME ASSESSMENT Germany has guidelines that exclusively concern oncological rehabilitation. However, these guidelines are only applicable to inpatient rehabilitation, since outpatient rehabilitation is stili in the process of being developed in Germany. These guidelines in Germany guarantee a certain quality of structures. These guidelines say that the head of a cancer rehabilitation hospital should be an oncologist, in particular a medica( oncologist; they say, that patients with an ostomy should only be rehabilitated in a rehabilitation hospital which has a stoma nurse on the team ... - ------------ Delbriick / Rehabilitacija - letn. VII, supl. 2 (2008) __________ _ References: l. Bundesarbeitsgemeinschaft fiir Rehabilitation. Rahmenempfehlungen zur ambulanten onkolooischen b Rehabi litation. Frankfurt: Bundesarbeitsgemeinschaft fiir Rehabilitation (BAR), 2003. 2. Delbriick H, Haupt E. eds. Rehabilitationsmedizin: Ambulant, Tei lstationar, Stationar. 2 .. iiberarb. und erw. Aufl. Miinchen; Baltimore: Urban & Schwarzenbero 1998. b' Id 3. Delbriick H. Rehabilitation and palliation of cancer patients: patient care. Paris; New York: Springer, 2007. 4. Delbriick H. Deutsche Krebsgesellschaft, eds. Standards und Qualitatskriterien in der onkologischen Rehabilitation. Miinchen: W. Zuckschwerdt Verlag, 1997. 5. Weis J, Bartsch HH, Nagel GA, Unger C. Psychosocial care for cancer patients: a new holistic psychosomatic approach in acute care and rehabilitation. Psycho-oncol (Chichester Engl.) 1996; 5(1): 51-54.